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Parent Project Muscular Dystrophy (PPMD)

PPMD is the largest nonprofit in the US focused on Duchenne muscular dystrophy, funding research and providing comprehensive family support. They maintain a Certified Duchenne Care Center network and offer extensive resources for families navigating diagnosis, treatment, and daily life with Duchenne.

Founded 1994Hackensack, NJ
🧩 Pediatric Therapy

Services & Programs

Cost Information

All PPMD family support services, educational materials, and referrals are free. They also offer travel assistance for families needing to access Certified Duchenne Care Centers.

Parent Tip

If your child has been diagnosed with Duchenne muscular dystrophy, PPMD should be your first call. Their family support team can connect you with a Certified Duchenne Care Center, explain treatment options, and introduce you to other families in your area.

Frequently Asked Questions

What is a Certified Duchenne Care Center?
These are medical centers that meet PPMD's standards for comprehensive, multidisciplinary Duchenne care. They have teams of specialists who understand the condition and follow evidence-based treatment guidelines.
Does PPMD help with non-Duchenne conditions?
PPMD's primary focus is Duchenne and Becker muscular dystrophy. For other forms of muscular dystrophy, the Muscular Dystrophy Association (MDA) provides broader coverage.

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